Registered Charity Number  1179383

 

 

Below are links to some of the main agencies available for Support/Information for carers & those we care for.  Information on these and other agencies can also be found on The Local Offer.      

 

Annakennedyonline is dedicated to promoting the inclusion and equality of children and adults with a disability throughout society. The charity promotes its mission of disability equality by developing and sponsoring training, by raising awareness of the challenges faced by people with disabilities and also by its advocacy efforts with and on behalf of people with disabilities.           

 
 

The Multi-Agency Safeguarding Hub (MASH) is asingle point of contact for all safeguarding concerns regarding children and young people in West Sussex which includes front door access for Early Help.

Information that will help if your child is excluded from school either fixed period or permanently.

Request an education, health and care (EHC) assessment. An education, health and care (EHC) plan is for children and young people aged up to 25 who need more support in school than is normally available through special educational needs support.

West Sussex Portage Service works along side parents offering practical help and ideas to encourage a child's emerging skills.  These include, moving, learning, playing, being with people and sharing routine activities of everyday life.

Information on finding support andguidance for children/young adults with Special Educational Needs and Disability.d y

Thumbs Up World Ltd are offering a range of products all which have a common theme of interaction, communication, fun and learning through awareness.  Their range is unique, affordable and most of all, fun.  They create a sense of adventure in daily lives. Each of their products has been designed with children in mind, ensuring they are easy to use, supportive and encouraging.

As a group of young adults with special needs we have taken the initiative to create our own business. Our work makes us smile and we hope our bakes will make you smile too!  We aim to make awesome tasting bakes that will make people happy. Our packaging will be funky and bright. We want to inspire other adults like us. Our bakery will produce ”Special Bakes by Special People”.

Information & support to help families get the right education for their children and young adults with special educational needs and/or disability (SEND)

The Springboard Project offers group based short breaks services for disabled children, teenagers and young adults aged 0 to 25 years in Horsham, Crawley and Worthing.
Springboard House Horsham is accessible, inclusive and open for stay and play for all

 

ADHD West Sussex - Crawley and Hurspierpoint Branch, are a parent led volunteer group, supporting parents, carers, professionals and individuals with ADHD across West Sussex.

Their aim is to grow understanding and awareness, to help wth everyday challenges, whilst recognising the unique colourful characteristics ADHD brings to our world.

West Sussex Parent Carer Forum is a local charity that supports parents and carers of children and young people (aged 0-25 years) with Special Educational Needs and Disabilities (SEND).We are an independent parent carer led charity, providing information, training and support, and representing the views of our members in West Sussex.

We work in partnership with others to make our collective voice heard, to positively shape local services for children and young people with SEND and their parent carers

 

With more than 26,000 carers currently registered with the charity, we run Support Groups, a Carer Response Line, help carers access equipment to assist them in their caring role or provide funds so that carers can do something for themselves. We can also help carers access counselling and call back services, wellbeing support and have teams in all the of the major hospitals in West Sussex, as well as East Surrey Hospital in Redhill.  

Here at Aspens, we help children, young people and adults with a range of disabilities and complex needs, as well as those on the autism spectrum. Through the provision of highly personalised support, we aspire to enable people to learn new skills, live life to the full and contribute to society wherever possible. 

                               

Transforming lives and changing attitudes We are the UK's leading charity for people on the autism spectrum and their families. Since 1962, we have been providing support, guidance and advice, as well as campaigning for improved rights, services and opportunities to help create a society that works for autistic people.

Information Advice & Support Services Network,(Formerly Parent Partnership), provide impartial advice and information to parents and carers of children who have special educational needs.  Tel: 0845 075 1008                     

 

Reaching Families is a parent-carer led, grassroots charity which aims to support parents and families of children and young people with special educational needs and disabilities in their daily lives, in particular through the delivery of information, training and peer support. We work with over 2,000 West Sussex families every year through a range of high quality projects and services.                              

 

Advice for passengers with hidden disabilities, or their carers, travelling through Gatwick Airport

Airport journeys can be stressful for many people, especially if you are unsure of what to expect on the day. Here you can find advice to help vulnerable adults and parents/ carers who are travelling with children and vulnerable adults whose difficulties may not be immediately apparent to our staff.

 

If you have speech or communication difficulties, registering for a Sussex Police Pegasus card could help you in an emergency, communicating for you when you can't

The details you give about your self  and your difficulties are held on a secure database & can be accessed by the police when you show them your card or quote your unique pin number over the phone. 

 

Jigsaw Occupational Therapy Limited is a specialist provider for children and young people living in the South East of England. Our dedicated assessment and sensory integration therapy centre is the first and only one of it's kind in Sussex.

Jigsaw Occupational Therapy was founded in order to offer more effective and personalised assessment and therapy specifically designed around each individual child and young person's needs.

We work with children and young people experiencing a wide array of profound and multiple disabilities. Some of these conditions include; cerebral palsy, autism and Asperger's syndrome, sensory processing disorders, acquired brain injuries, motor coordination difficulties and learning disabilities.

 

Independent Lives is a user-led charity. We work with people with support needs and carers, to enable people to lead full, active and independent lives.  Our vision is a fairer society where everyone can participate and has the opportunity to fulfil their potential.  Working together we achieve real change in the lives of the people we support - so that we can all participate in our communities and have greater choice, control and freedom.    

 

Home-Start is a local community network of trained volunteers and expert support helping families with young children through their challenging times. We are there for parents when they need us the most because childhood can’t wait.

Home-Start works with families in communities right across the UK. Starting in the home, our approach is as individual as the people we’re helping. No judgement, it is just compassionate, confidential help and expert support.                      

 

Healthwatch West Sussex exists to make health and care services work for the people who use them.   They give people across West Sussex the opportunity to have their say about health and care services. They are an independent organisation but they have a statutory voice, meaning commissioners and providers have to listen to people through them.                  

 

As one of the country’s largest not-for-profits supporting people with learning disabilities, autism, challenging behaviour and complex needs, we are driven by our values. People with learning disabilities and their families are at the heart of everything we do and we want every person we support to have a great life, with excellent outcomes.  We support people to be active in their communities.W

 


Renaissance Legal specialise in working with families and carers of disabled and vulnerable individuals, helping them plan effectively for the future with Wills, Trusts, Powers of Attorney, Court of Protection applications and Inheritance Tax Planning. The specialist provider of legal advice to parents and carers in the South East and beyond, Renaissance Legal has an unrivalled reputation for their work in the disabled and vulnerable community. The growing team prides itself on truly understanding the unique needs of families and disabled individuals – all of whom are dealing with complex, often challenging lives, where it’s vital that they understand their options. As well as advising families and carers of disabled individuals, we also provide legal advice to people in later life, individuals and families.